TechCrunch News 03月26日 01:11
23andMe files for bankruptcy: How to delete your data
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23andMe公司申请破产保护,引发对其1500万用户基因数据安全的担忧。文章提供了用户保护数据的具体步骤,包括删除个人数据、撤销研究数据使用权等。尽管无法完全删除数据,但用户仍可通过这些措施降低风险。同时,文章也提醒用户关注亲友的数据安全,共同采取行动。

🧬 删除个人数据:用户需登录23andMe账户,在设置中找到“23andMe数据”选项,点击“查看”,然后选择“删除数据”并确认。用户会收到一封电子邮件,通过链接确认删除请求。删除前可选择下载数据副本。

⚠️ 了解数据保留:23andMe的隐私政策规定,公司将保留用户的基因信息、出生日期和性别,以符合法律义务。此外,还会保留与账户和数据删除请求相关的有限信息,如电子邮件地址等,用于法律、合同和审计目的。

🔬 撤销数据使用授权:用户可以在账户设置中撤销对23andMe及其第三方研究人员使用其基因数据和样本进行研究的授权。虽然可以撤销授权,但无法删除已共享的信息。

DNA testing service 23andMe filed for bankruptcy protection on March 16, sparking concerns about what could happen to the genetic data of the company’s 15 million customers. 

23andMe has said that “data privacy will be an important consideration in any potential transaction.” However, security experts and lawmakers have cautioned customers to take action to protect their data, considering that a new owner could change how the company’s data is managed and used. 

If you’re one of the 15 million people who shared their DNA with 23andMe, we’ve outlined the steps you can take to protect yourself. While you can’t delete all your 23andMe data, there are some things you can control.

It’s worth noting that the data removal process may take some time, as users have reported that 23andMe’s website is functioning slower than usual, likely due to people flocking to the site to delete their data.

To delete your data from 23andMe, you need to log in to your account.

Firstly, navigate to the Settings section of your profile. Then, scroll down to the selection labeled 23andMe Data. From there, click the View option and then scroll to the Delete Data section. Next, select the Permanently Delete Data button.

You will then receive an email from 23andMe with a link that will allow you to confirm your deletion request. 

You can choose to download a copy of your data before deleting it.

There is an important caveat, as 23andMe’s privacy policy states that the company and its labs “will retain your Genetic Information, date of birth, and sex as required for compliance with applicable legal obligations.”

The policy continues: “23andMe will also retain limited information related to your account and data deletion request, including but not limited to, your email address, account deletion request identifier, communications related to inquiries or complaints and legal agreements for a limited period of time as required by law, contractual obligations, and/or as necessary for the establishment, exercise or defense of legal claims and for audit and compliance purposes.”

This essentially means that 23andMe may keep some of your information for an unspecified amount of time. 

If you previously opted to have your saliva sample and DNA stored by 23andMe, you change this setting.

You can revoke your permission by going into your 23andMe account settings page and then navigating to Preferences. 

In addition, if you previously agreed to 23andMe and third-party researchers using your genetic data and sample for research, you can withdraw consent from the Research and Product Consents section in your account settings. 

While you can reverse that consent, there’s no way for you to delete that information.

Once you have requested the deletion of your data, it’s important to check in with your family members and encourage them to do the same because it’s not just their DNA that’s at risk of sale, it also affects people they are related to. 

And while you’re at it, it’s worth checking in with your friends to ensure that all of your loved ones are taking steps to protect their data. 

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23andMe 基因数据 数据安全 隐私保护
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